An Essex Inherited Cardiac Conditions Service Pathway has been set up to coordinate the care of patients with the inherited cardiac conditions cardiomyopathy, arrhythmia syndromes, and families of sudden arrhythmia death syndrome (SADS). Care up until this point has been inconsistent and spread across general cardiology clinics without specialist interest or infrastructure for thorough screening.
- Patients with confirmed or suspected cardiomyopathy (including dilated cardiomyopathy, hypertrophic cardiomyopathy and arrhythmogenic cardiomyopathy) or arrhythmia syndrome (including long QT and Brugada)
- First degree relatives of patients with ICC or SADS, for clinical +/- genetic screening as appropriate
- Via RAS.
- Please include any available details regarding the index case if the referral is for family screening (name/DOB/diagnosis and where diagnosis was made, if known)
An overview of the pathway can be found here.